Chris Brannigan is walking 700 miles barefoot from Lands End to Edinburgh to raise funds for his daughter's treatment who has a rare condition called CDLS.

Waldorf Astoria Edinburgh - The Caledonian, has given Chris, his wife and their 3 children a free overnight stay and dinner at the luxury hotel as a way to support his campaign.

 

Chris is due to arrive at Edinburgh Castle today (Wednesday) around 6pm and will be heading to Waldorf Astoria Edinburgh for some relaxation and a well deserved massage after that.

 

He is currently sharing regular updates of his progress on his Twitter account. His fundraising target was £300,000, currently £316,047 has been raised.

 

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His fundraising page states:

"In March 2020 I set up a charity, 'CdLS Hope for Hasti' (charity number 1188769). The aim of the charity is to fund the research and development of a ground breaking gene therapy treatment for children suffering from this terrible disease. The total cost is £400,000. We are running out of time to raise the money as mental decline will start at puberty, and that is not far away for Hasti. 

From Monday 06 July, I'll be walking the 700 miles from Land's End to Edinburgh . I'll be doing it while carrying 25kgs of kit on my back with everything I need to keep going, including my trusty one-man tent which I'll be sleeping in to keep costs down. I will be wearing full combat kit including a body armour which will be heavy and hot. I will however be missing one element of my clothing .... my boots! I will do the 700 mile March BAREFOOT!

I know it's madness and, if I'm honest, I'm terrified of failing. It is going to be painful and I already have a knee injury, but I am a dad and I have to fight for my little girl Hasti and all the other forgotten children with rare disease. 

* 1 in 3 of all children with a rare disease never live to celebrate their fifth birthday

* 95% of all rare diseases have NO treatment ... none!

* 3.5 million people in the UK will be affected by a rare disease in their lifetime - 50% of them will be children.

* A person with a rare disease can expect to wait four years just to get a diagnosis (if they get one at all) and to be before that they can expect to be misdiagnosed three times. 

These sick children deserve more than this. Will you help me to change their future?"

 

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We invite you to support his campaign and donate any amount via: https://www.justgiving.com/fundraising/barefootacrossbritain 

 

If you are in Edinburgh today and near the hotel, pop in to welcome him back after his incredible achievement. 

 

If you are planning to visit Edinburgh soon, the hotel's restaurant Grazing by Mark Greenaway reopened last Friday with a whole new fine dining style menu and new 6-course tasting menu with pairing wine or pairing Scottish craft beers from Harviestoun brewery. Haviestoun’s Master Brewer personally matched their beers to the menu. They are also serving afternoon tea again from Saturday-Wednesday and with the Eat Out to Help Out offer available Monday-Wednesday the cost is only £25 per person instead of £35

 

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Waldorf Astoria Edinburgh - The Caledonian
https://www.hilton.com/en/hotels/ednchwa-waldorf-astoria-edinburgh-the-caledonian

 


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